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skip to main content efcca toggle navigation search form search home about efcca efcca members what is ibd projects active projects projects archive events events archive next events clinical trials active trials trials archive news multimedia photo gallery video magazine stakeholders partners contacts tools share share on facebook share on twitter share on google+ share on linkedin kick off meeting efcca academy we are excited to announce the kick off meeting for the efcca academy. from 14-17 june 2018 a pilot group of 10 patient representatives will meet in brussels for an intensive training on advocacy to raise ibd awareness. students will be trained in strategic topics, such as public speaking,... read more new efcca chairperson we are pleased to announce that salvo leone has been elected as new efcca chairperson during our general assembly in bucharest, romania on 25-26 may 2018 . salvo has been a long-standing board member of the efcca board and is also the director of the italian ibd association, amici. he is taking... read more international symposium on ibd research efcca´s second symposium on ibd research funded by patients took place in bucharest, romania on 27 may 2018. the symposium brought together over 80 representatives from patients groups from 5 continents, gastroenterologists and other healthcare providers as well as relevant stakeholders in order... read more final report "mapping of innovative medicines" the final report of our "mapping of innovative medicines and devices in efcca member countries" is now available for download. 31 countries (including 32 patient associations) from the efcca network participated in this project between october 2016 and december 2017. the results show existing... read more world ibd day 2018 world ibd day takes place on 19 may each year and unites people in their fight against crohn's disease and ulcerative colitis, known as inflammatory bowel diseases (ibd). efcca is coordinating this year´s campaign which will see famous landmarks around the globe lit in purple in order to raise... read more welcome to efcca the european federation of crohn's & ulcerative colitis associations is an umbrella organisation representing 36 national patient associations. efcca works to improve the quality of life for people with ibd and give them a louder voice and higher visibility across europe and beyond. its headquarter is based in brussels and has three staff members that work alongside the executive board which consists of 6 elected representatives from its member associations. projects highlights efcca academy start date: 06/2018 status: active efcca academy - training certified patient experts efcca is embarking on an exciting new project under the title "efcca academy- training certified patient experts". the pilot phase will be launched... read more innovative medicines - mapping project start date: 07/2016 status: concluded innovative medicines - eu mapping project the objective of this project is to reduce health inequalities in europe through an exhaustive mapping of all innovative treatments and devices available in... read more living with ibd - animations start date: 04/2016 status: active efcca is involved in an exciting project aimed at helping people to ‘live well’ with ibd. we are developing a series of animation videos that will equip people with practical advice and relevant... read more patient safety: biologics and biosimilars start date: 10/2014 status: active in the last two years the issue on biologics and biosimilars has received a lot of attention from the medical, regulatory and patient community. licensing rights of biological medicines used in the... read more what's new world ibd day - italy efcca member, amici, has launched a video to promote #worldibdday2018 in italy. the video is available on the amici website (https://www.amiciitalia.eu/) and will also be shown at mobile charging... read more independent grants for learning & change the pharmaceutical company, pfizer, has launched a call for proposal within the framework of the "independent grants for learning & change". the call is for proposals on "appropriate... read more european medicines agency - newsletter you can find key information for patients, consumers and healthcare professionals in the newsletter that is published monthly by the european medicines agency by clicking here. previous editions can... read more pouch surgery "considering whether to have ileal pouch surgery" is a booklet for ulcerative colitis patients which was recently made in a joint effort between dr andrew mccombie, crohn ́s and colitis new zealand (... read more camp purple live 2018 by : new zealand - associated members - the crohn’s and colitis new zealand charitable trust (new zealand) watch the video from the camp purple live 2018 ! our colleagues in new zealnad, crohn's and colitis nz have just completed their summer camp for 60 children and teens. camp purple live provides an... read more european commission publication on biosimilars the european commission has published translations of comprehensive information for patients on biosimilar medicines. it contains questions and answers on biosimilar medicines and is now available in... read more pharmacovigilance in the eu this book is open access under a cc by 4.0 license. the book presents the results of an in-depth comparative study assessing the implementation of the eu pharmacovigilance directive in six eu... read more report from nutrition conference the report from the ¨optimal nutritional care for all¨conference is now available for download. the conference was organised by the european nutrition for health alliance’s (enha) optimal nutritional... read more "ibd and me" teenage transition website by : new zealand - associated members - the crohn’s and colitis new zealand charitable trust (new zealand) ‘ibd and me’ teenage transition website the transition from paediatric to adult care for young people living with ibd is ideally a staged process where young adults are gradually integrated into... read more interview with gediminas smaily interview with gediminas smaily from the lithuanian ibd patient association during the efcca general assembly. read more interview with magdalena sajak, new efcca board member interview with the newly elected efcca board member, magdalena sajak, jelita, poland. read more the ibd journey the video ¨the ibd journey¨ highlights the need for multi-disciplinary care in treating ibd, from a range of healthcare providers and carers, including doctors, nurses, psychologists and... read more efcca magazine issue 2/2017 we proudly present the second issue of the efcca magazine 2017. in this edition you will find a wide range of information about world ibd day, efcca activities, the efcca youth group, member news and... read more medical devices: more safety, more traceability stricter rules to ensure that medical devices such as breast or hip implants are traceable and comply with eu patient safety requirements were backed by meps on wednesday. meps also approved laws to... read more meps propose ways to make medicines more affordable new medicine prices in the eu have risen over the past few decades, to the point of being unaffordable for many eu citizens and threatening the sustainability of national health care systems. to... read more patient advocacy and safety conference on 15th november 2016, more than 70 patient advocates and physicians from across the european union attended the patient advocacy and safety conference at the european parliament in brussels, belgium... read more what you need to know about biosimilar medicines the european commission dg for internal market, industry, entrepreneurship and smes, have published 6 new language versions of the patient information document "what you need to know about... read more life after ibd diagnosis for many people, diagnosis with inflammatory bowel disease (ibd) can be an overwhelming and confusing time. not just for the person with the condition, but also for those who are close to them. being... read more artificial nutrition pacifhan assists people travelling with home artificial nutrition “to travel is to live” hans christian andersen imagine having a complex medical condition and treatment that enables you to live but... read more symposium on innovations in gastroenterology we are pleased to announce a new initiative, "innovations in gastroenterology, 2017 symposium” to be held in tel aviv, january 4-6, 2017. this will be an exclusive event where gastroenterologists,... read more patient safety conference - european parliament patient representatives participate in open debate on patient safety issues and right to information at the european parliament brussels, 15 november 2016. the european federation of crohn's &... read more transition care in ibd efcca ceo, luisa avedano, participated at the press conference on paediatric digestive health during the ueg week in vienna on 17 october 2016. she presented the transition to adult care project... read more "from health system sustainability to promoting inclusive growth" - conference report the lithuanian health forum conference held in vilnius was organised to consolidate and address the policies, goals, and objectives of the vilnius declaration’s “sustainable health systems for... read more efcca magazine 3/2016 the third issue of the efcca magazine 2016 is now available online. we hope you enjoy reading about our latest activities, news from our members and other interesting articles related to ibd such as... read more executive summary - patient advocacy workshop this is the executive summary of the patient advocacy workshop on patient safety which took place in barcelona from 4-6 february 2016 and gathered over 60 patient representatives from a wide range of... read more ipodd ... eu research project on ibd the eu project ipodd takes a pragmatic approach to ibds by focusing on the final stages of gut damage. sergio pistoi, ipodd public information officer* if criminals were behind inflammatory bowel... read more survey on ibd patients' perception of surgery an international online survey promoted by the european federation of crohn’s and ulcerative colitis associations (efcca) with the scientific support of and international team of experts led by... read more commisioner borg video commissioner borgh addressing efcca general assembly commissioner borgh from the european commission´s directorate for health and consumers welcomed delegates to the 24 general assembly of efcca... read more efcca article published in journal of crohn´s and colitis results of the efcca led impact survey have been published in the latest issue of the journal crohn´s and colitis. in the article entitled "ibd and health-related quality of life- discovering the... read more tecniche diagnostiche per il morbo di crohn read more inflammatory bowel disease (ibd) read more world symposium on ibd research world symposium on ibd research funded by ibd patients associations global alliance against ibd on 18 october 2012, the european federation of crohn's & ulcerative colitis associations (efcca... read more latest multimedia international symposium on ibd research 2018 read more efcca general assembly 2018 read more camp purple live 2018 by : new zealand - associated members - the crohn’s and colitis new zealand charitable trust (new zealand) read more interview with gediminas smaily read more interview with magdalena sajak, new efcca board member read more efcca general assembly 2017 read more social programme agm 2017 read more jason´s story read more living with ibd read more concetta´s story read more jason´s story read more maria´s story read more sami´s story read more stephanie´s story read more brussels half marathon 2016 world ibd day 2016 read more efcca general assembly 2016 read more world ibd day 2016 read more ecco-efcca patient guidelines - martin kojinkov interview read more brussels half marathon 2015 - interviews read more efcca general assembly 2015 read more brussels half marathon 2015 world ibd day 2015 read more symposium on biologic and biosimilar read more world ibd day 2015 video playlist read more brussels half marathon world ibd day 2014 read more efcca general assembly 2014 read more commisioner borg video read more from eu citizenship to ibd-zenship 2013 read more european parliament bruxelles may 16 2013 read more efcca general assembly 2013 read more join the fight against ibd 2013 read more join the fight against ibd 2013 read more short summary of the join the fight press conference read more efcca and world ibd day 2013 read more tecniche diagnostiche per il morbo di crohn read more inflammatory bowel disease (ibd) read more world symposium on ibd research read more world ibd day 2012 read more join the fight against ibd video read more join the fight against ibd event video read more efcca and world ibd day 2012 read more anaemia video read more the impact of ibd read more user login username * password * request new password log in latest posts efcca academy type: project efcca academy - training certified patient experts efcca is embarking on an exciting new project under the title "efcca academy- training certified patient experts". the... innovative medicines - mapping project type: project innovative medicines - eu mapping project the objective of this project is to reduce health inequalities in europe through an exhaustive mapping of all innovative... clinical research study type: clinical trial information about on-going clinical trial the primary objective of the traffic clinical research studies is to find out if the investigational medicine being studied is... run with us to raise ibd awareness type: project as part of the world ibd day celebrations efcc organised participation at the brussels 20 km marathon in order to raise awareness about crohn´s disease and ulcerative colitis,... clinical research study type: clinical trial information about on-going clinical trial the primary objective of the traffic clinical research studies is to find out if the investigational medicine being studied is effective... 1 of 46 next › efcca members javascript is required to view this map. efcca rue des chartreux, 33-35 brussels b 1000 belgium phone: +32 2 540 84 34 fax: +32 2 540 84 34 http://www.efcca.org follow us facebook tripadvisor -- twitter google+ instagram -- [privacy] [site credits] powered by drupal

URL analysis for efcca.org

http://www.efcca.org/en/transition-care-ibd
http://www.efcca.org/en/trials-archive
http://www.efcca.org/en/media/join-fight-against-ibd-video
http://www.efcca.org/en/media/efcca-general-assembly-2013
http://www.efcca.org/en/media/camp-purple-live-2018
http://www.efcca.org/en/media/join-fight-against-ibd-event-video
http://www.efcca.org/en/active-projects
http://www.efcca.org/en/news/medical-devices-more-safety-more-traceability
http://www.efcca.org/en/news/symposium-innovations-gastroenterology
http://www.efcca.org/en/media/join-fight-against-ibd-2013-0
http://www.efcca.org/en/events-archive
http://www.efcca.org/en/media/symposium-biologic-and-biosimilar
http://www.efcca.org/en/projects/living-ibd-animations
http://www.efcca.org/en/welcome-efcca?page=1
http://www.efcca.org/en/vef/load/8691366389b0e53891f7a6760eabc417?width=480&height=275

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Domain Name: EFCCA.ORG
Registry Domain ID: D68163310-LROR
Registrar WHOIS Server: whois.publicdomainregistry.com
Registrar URL: http://www.publicdomainregistry.com
Updated Date: 2018-01-15T00:20:43Z
Creation Date: 2001-03-22T23:11:26Z
Registry Expiry Date: 2019-03-22T23:11:26Z
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Registrar IANA ID: 303
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +1.2013775952
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Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Registrant Organization: Privacy Protect, LLC (PrivacyProtect.org)
Registrant State/Province: MA
Registrant Country: US
Name Server: NS1.NETSONS.NET
Name Server: NS2.NETSONS.NET
DNSSEC: unsigned
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  REFERRER http://www.pir.org/

  REGISTRAR Public Interest Registry

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OWNER

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